Splash of Support

Many affected by EDS find themselves without direction or information on this rare disorder.

We want that to change!

Together we can spread awareness and build a foundation of support for everyone with EDS in their lives!

Please follow this link to print the Splash of Support registration form/t-shirt order form.

Splash of Support Registration

[to the left click "File", then click "Print (pdf)"]

We look forward to visiting with you! 

Hope to see you there!

SPLASH OF SUPPORT Hotel Information

Hi everybody!  We are hoping people are starting to plan the trip to Manito for the Splash of Support event!  Currently we are working on getting more information and details up for you!  As for now, we do have information on a hotel in case some of you need to spend the night!  Unfortunately Manito does not have any hotels, so the closest place is in Pekin, which is about 15-20 minutes away.  We have blocked rooms at the Holiday Inn Express and here is the information:

1.309.353.3305

3615 Kelly Ave

Pekin, Il 61554

$92/Night

 

Thanks everybody!  We are all getting very excited for this event and can't wait to meet everybody! 

Hope everyone is having a great summer so far! 

Stay tuned for more details!

Splash of Support!!!

Save the Date!

July 16, 2011

6:30pm-10:00pm

Manito, Illinois

If you, a family member, or someone you know is affected by Ehlers Danlos Syndrome, please join us on July 16 in Manito, Illinois for a splash of support!
Bring your family to enjoy the Sun, Swim, Snacks, and Support for Ehlers Danlos Syndrome!
More details to come shortly!!!