Ruth Cooper and Daughters

Ruth Cooper and Daughters
Ruth Cooper and Daughters

Monday, June 20, 2011

Splash of Support

Many affected by EDS find themselves without direction or information on this rare disorder.

We want that to change!

Together we can spread awareness and build a foundation of support for everyone with EDS in their lives!


Please follow this link to print the Splash of Support registration form/t-shirt order form.

[to the left click "File", then click "Print (pdf)"]


We look forward to visiting with you! 
Hope to see you there!

Wednesday, June 15, 2011

SPLASH OF SUPPORT Hotel Information


Hi everybody!  We are hoping people are starting to plan the trip to Manito for the Splash of Support event!  Currently we are working on getting more information and details up for you!  As for now, we do have information on a hotel in case some of you need to spend the night!  Unfortunately Manito does not have any hotels, so the closest place is in Pekin, which is about 15-20 minutes away.  We have blocked rooms at the Holiday Inn Express and here is the information:

1.309.353.3305
3615 Kelly Ave
Pekin, Il 61554
$92/Night
 
Thanks everybody!  We are all getting very excited for this event and can't wait to meet everybody! 
Hope everyone is having a great summer so far! 
Stay tuned for more details!

Sunday, June 12, 2011

Splash of Support!!!



Save the Date!
July 16, 2011
6:30pm-10:00pm
Manito, Illinois
If you, a family member, or someone you know is affected by Ehlers Danlos Syndrome, please join us on July 16 in Manito, Illinois for a splash of support!
Bring your family to enjoy the Sun, Swim, Snacks, and Support for Ehlers Danlos Syndrome!
More details to come shortly!!!